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Rank: Newbie
Groups: Registered
Joined: 7/25/2011
Posts: 3
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Hello Everyone My name is Jan and have had RA for about five years now I am 48yrs old but feel about 90 some days lol. I was advised to join NRAS by my rheumy nurse Linda and can't believe I never joined before now, I have read a lot of your stories and it's good to know there is someone to talk too who understands. I was first put on suphasalazine which I still take now, then my consultant introduced methotrexate and they affected me badly I felt so ill with nausea and headaches so she took me off them after 6 months and tried leflunomide which were ok... till my hair started falling out. I now have had my first injections of cimzia last thursday and a low dose of methotrexate so now just waiting to see how I go with it. For someone who hates taking tablets and also hates needles this is not the illness to get. I had my own grocers shop but a year after being diagnosed I had to give it up as it was too hard to carry on. I now work part time in a funeral home  (usually a conversation stopper I know) but my job suits me and I am happy to be working again and dont feel useless like I did. wow I had better stop now before I bore you lol .... Thanks for letting me ramble on Jan x
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Rank: Advanced Member  Groups: Registered
Joined: 6/18/2010 Posts: 351 Location: Herne Bay Kent
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Hi Jan Welcome to the forum where you can rant and rave as much as you like. I am sure you will find it a huge source of encouragement and inspiration as I have and it is great to be able to chat to others who know how you are feeling. You will also find people who have a huge amount of knowledge about RA. I have been diagnosed 5 years and am currently taking Methotrexate and Enbrel having just stopped Sulphasalazine. I know what you mean about all the medication and blood tests etc, not for the faint hearted!! I am pleased you have found a job that you are able to do and that you enjoy. Look forward to hearing more from you. Best Wishes Sue 
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Rank: Newbie
Groups: Registered
Joined: 7/25/2011
Posts: 3
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hi Jan Welcome to the forum. A great place to be for support and information; lots of folk, lots of knowledge and a wealth of tried and tested experiences! Glad you have joined us! I'm Lyn, married to Mike, we have four 'growing-up' children and live in Thornton Cleveleys in north west Lancashire. I was diagnosed with RA 23 years ago and have since run the gamut of medication (although more options are popping up now and again thankfully!) and had lots of surgical procedures along the way. Currently on Enbrel, Methotrexate, Prednisolone and Naproxen, and a wagon load of pain killers! Been largely out of control for the last 12 months, but heyho things can only get better ... hopefully! Great that you are still able to work ... and there's nothing quite like a conversation stopper! It does us good to know that we have a role in society despite this sometimes obnoxious disease. Good luck with the Cimzia. Keep posting, look forward to getting to know you. Lyn x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Hi Jan
And a warm welcome from me too! You can't meet a better bunch of folks anywhere - it's just such a pity we have to have RA to "join the club".
I'm Jean one of the oldest (gulp) on the forum (although I look VERY young). I'm married to Steve and have a wonderful daughter (Lucy) and two smashing grandkids. I've had RA for about 9 years now and although I have had many ups and downs, the ups win through in the end!
Looking forward to gettuing to know you.
Love Jeanxx
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Rank: Advanced Member
Groups: Registered
Joined: 5/19/2010
Posts: 384
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Hello Jan,
Welcome to the forum. I'm Anne 51 years old married with two boys 19 and 20 and a fosterboy aged 9. I was diagnosed May 2010 and am currently taking 25mg MTX and folic acid, which is working brilliantly at the moment, but had a few blips along the way.
I to still work although only for a couple of hours a day in a special needs school which I love, but your job sounds perfect I bet its so peaceful.
Honestly no one minds if you come on here and have a moan, most of us have done it and if it makes you feel better then go for it. Take care, look forward to reading your posts.
Anne x
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Rank: Advanced Member  Groups: Registered
Joined: 11/20/2010 Posts: 244 Location: Cornwall
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Hello Jan,
A warm welcome from me too, Sara, 45 diagnosed last November on the MTX and eveything's under control now so I shouldn't feel 90 some days but do because I'm still trying to get my head around this pacing yourself business. Still trying to come to terms with everything and facing facts with work etc. I've looked after my neighbours business sometimes whilst she's been on holiday and she does the orders of service for funerals. I must say undertakers have the very best sense of humour, got to I suppose!
Never feel like you're being boring, I always find posts interesting whatever they're about and there will always be some friendly advice, encouragement and support from people who know.
Sara
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Jan,
Welcome to the forum, you'll get lots of support and advice on here.
I am 61 and have had RA for 10 long years, now taking mtx and humira.
I live with my husband and 22 year old daughter who is just about to go off to Canada for a few months!
Looking forward to getting to know you.
Love, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Hi Jan
Welcome to NRAS!
I am Jenni, 35, married with 3 children who are 16,14 and 3!
I have severe RA Im afraid so been a tough nut to crack with the meds so waiting for a new one to be allowed in from America.
Look forward to hearing from you more often now you have taken the plunge on the forum.
Jenni
how to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Hi Jan A big welcome from me too, its a great place to be for lots of support and advice that you really won t be able to find anywhere else . I am 55 and have had RA for just over two years and started on Cimzia last week too, hope this really works for you we will have to compare notes Good luck, and keep us posted how things are going for you. Julia x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Welcome Jan, you'll get loads of support here, everyone is fantastic. I am Barbara, 57 and married to Roy 4 grown kids. On mtx and hydroxy, been told well controlled but you could have fooled me!!! Oh, f orgot, diagnosed two years ago BARBARA
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hi Jan, and a big welcome to the forum - a pretty good place to come for info, empathy, advice and lots of humour : an important weapon in the fight with RA!! I was diagnosed almost six years ago now, and am currently taking humira via injection. I`m married to Nick, and we have two grown-up sons and two little grandsons. Do keep posting, Kathleen C x
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello Jan
A big welcome from me. Don't ever be sorry to moan on here. The forum is great and there is always
someone on here that will give you good honest and 'tried' advice.
I am Rose 57 married to Mike and 2 grown up children and 1 granddaughter. I was diagnosed 2008
and have failed of DMARDS mtx, hydro and leflun and started TNF/Humiramon June 2011. Waiting that
to do its magic.
Keep posting
Rose
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Rank: Newbie
Groups: Registered
Joined: 7/25/2011
Posts: 3
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Thanks everyone for all the replies you have made me feel very welcome.
When I first found out I had RA I was gutted because my mother in law has it too and she has had 3 knee replacements ,hip replacements and both her shoulders need doing too and I thought is this what I have got to look forward to. Now I find that I could be in a better position than her as back then there was no help and hardly any medication other than painkillers. I am due my next injections of cimzia on thursday and then it will be 1 fortnightly.
I dont want to tempt fate but I can feel a slight improvement ie not so tired or stiff but we will wait and see how I go.
Thanks again for the warm welcome ..... Jan x
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